Volunteer Job
Opportunities
In order to help more families and individuals and raise greater awareness of HLH, we need more volunteers! We invite you to share your time with us to help us keep our efforts strong. Learn how you can support our mission by applying to one of the below volunteer positions or complete our volunteer form below and we will help you find a special place in the foundation.
Volunteer Web Designer
(Wix or Similar Platforms)
Location: Remote
Time Commitment: 2-3 hours per month for at least 1 year.
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Role Overview:
We are looking for a volunteer web designer with experience using Wix or similar website building platforms to support our organization by improving and maintaining our website. This role is ideal for someone who is proactive, detail-oriented, and eager to contribute to the success of a nonprofit. As part of our team, you will help us update the website based on feedback from a recent website audit, provide your expert advice for ongoing improvements, and assist with regular website updates.
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Key Responsibilities:
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Review and analyze our current website to identify areas for improvement, based on insights from a website audit.
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Update and optimize website content, layout, and design based on audit feedback, ensuring alignment with nonprofit goals.
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Provide ongoing feedback and recommendations for website improvements and best practices.
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Implement minor design changes, content updates, and technical fixes on an ongoing basis.
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Ensure the website is mobile-friendly, accessible, and user-friendly.
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Work with the nonprofit team to ensure the website meets the needs of our audience and reflects our brand identity.
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Assist with troubleshooting and resolving website-related issues as they arise.
Qualifications:
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Experience with Wix or similar website platforms (such as WordPress, Squarespace, or Shopify).
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A solid understanding of web design principles, user experience (UX), and responsive design.
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Basic knowledge of HTML, CSS, and other web development tools is a plus, but not required.
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Strong attention to detail and ability to work independently.
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Excellent communication skills and the ability to collaborate with a remote team.
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Prior experience working with nonprofits or volunteering is a plus.
Social Worker Database Volunteer
Location: Remote
Time Commitment: 2-3 hours per month for at least 1 year.
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Role Overview:
We are seeking a detail-oriented and organized person to help expand and maintain our database of hospital social workers that work for the hematology or bone marrow floor. This role is crucial in supporting our mission and ensuring our data is accurate and that every hospital has our assistance form to help future HLH families.
Key Responsibilities:​
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Maintain and update the database of hospital social workers that work for the hematology or bone marrow floor.
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Ensure data integrity by performing regular audits and cleaning of the database.
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Support the team in data entry, retrieval, and reporting.
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Develop and implement data management procedures and best practices.
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Qualifications:​
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Strong attention to detail and organizational skills.
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Ability to work independently and remotely.
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Basic understanding of data privacy and security best practices.
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Excellent communication skills, both written and verbal.
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Experience in a nonprofit environment is a plus, but not required.
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Marketing and Social Media Coordinator
Location: Remote
Time Commitment: 2-3 hours per month for at least 1 year.
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Role Overview:
We are looking for a creative and motivated Marketing and Social Media Coordinator to help amplify our mission and engage our community. This volunteer position is essential for developing and executing marketing strategies that raise awareness about our work supporting families impacted by a rare disease.
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Responsibilities:
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Social Media Management: Create, schedule, and post engaging content across various platforms (Facebook, Instagram, etc.) to increase awareness and engagement.
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Content Creation: Develop compelling graphics, videos, and written content that highlights our programs, events, and success stories.
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Campaign Development: Plan and execute targeted marketing campaigns to promote fundraising events, awareness initiatives, and community engagement activities.
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Community Engagement: Interact with followers, respond to inquiries, and foster a sense of community online.
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Analytics and Reporting: Monitor social media metrics and website analytics to evaluate the effectiveness of marketing strategies and provide insights for improvement.
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Collaboration: Work closely with other team members to align marketing efforts with organizational goals and initiatives.
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Qualifications:
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Experience: Previous experience in marketing, social media management, or communications, preferably in a non-profit context.
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Creative Skills: Strong writing, graphic design, and content creation skills; familiarity with design tools (e.g., Canva) is a plus.
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Tech Savvy: Proficiency in using social media platforms and tools, as well as basic knowledge of website management (e.g., Wix).
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Communication Skills: Excellent interpersonal and communication skills, with the ability to engage diverse audiences.
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Passion for the Mission: A genuine commitment to supporting families affected by rare diseases and raising awareness in the community.
Coming Soon
Keep an eye open for future postings
