Meet The Board

Jessica is a Licensed Clinical Social Worker that is originally from Iowa. Jessica went to school at the University of Northern Iowa and received her Masters at the University of Michigan. Jessica is the mom of 3 boys. Will (age 4), Jack, and Baby Hrevus- due summer 2022. Jack or “Jack-Jack” was diagnosed with HLH at 3 months of age in October 2020 and died in March 2021 due to adenovirus in his lungs post transplant. Jessica and Jake (her husband) talked many times in the hospital about having a “one stop shop” for families and individuals with HLH to get the support they needed after receiving a diagnosis. HLHHF hopes to be that place for this community. 

Courtney is a wife, mother, and a full time employee at a hospital where she works as a purchasing buyer. Courtney has 3 children, Riley and Kennedy (who are carriers of the HLH gene), and Myles, her HLH warrior who fought for 4 months in his battle against HLH and gained his angel wings in Oct 2020. Courtney and her husband Brandon helped as founding members of HLH Heroes Foundation. It is their passion to share Myles' story and be there for other families that are on the hard journey of treatment for HLH.

​

​

Carrie is a full-time mom to two beautiful kids - CJ, a primary HLH survivor, and Abby, his life-saving donor. CJ was diagnosed at 3 months old in December of 2020, underwent a bone marrow transplant at 5 months old and is now enjoying the opportunity to explore the world as a happy and healthy preschooler!  Carrie helped form the HLH Heroes Foundation with a passion for bringing those affected by an HLH diagnosis together and giving them hope for the future.

​

​

Jake is a Learning & Development Specialist in St. Louis, MO. He graduated from the University of Missouri with a Bachelor’s of Science in Education. Jake is a father of 3 boys. Will (age 6), Jack, and Maverick (age 2). He enjoys supporting the various activities of his sons whether it’s coaching or being a spectator on the sidelines. He is the proud father of Jack who passed away from HLH in March of 2021. His love for Jack and desire to help individuals and families impacted by HLH is what drives his involvement with HLH Heroes Foundation.  

​

Molly works full time at Worldwide Technology in St. Louis, MO. She has 3 children: Henry, Lilly (5) and Dominic (3). Henry is her reason for being involved with HLH Heroes Foundation. He was diagnosed with Primary HLH at 4 months old and unfortunately passed away after 6 long weeks of fighting in the hospital (a day before he would turn 6 months). Molly's passion for this foundation is help other families not feel alone and support them in their times of need.

​

​

​

Cassandra is a stay-at-home mother to three and one on the way, Ameliah, Alivia and Arleo. Alivia was misdiagnosed for 3 months and finally at 8 months old confirmed by bone marrow biopsy results to have Primary HLH syndrome. Cassandra advocated for Alivia's treatment to be transferred to Cincinnati Children’s and never looked back!  Cassandra is so honored to be a part of this foundation and give back in ways she wishes existed when her family went through the long, hard and exhausting days of treatment. Cassandra enjoys being a part of the social media and marketing aspect to help connect families and offer support via education and past experience.